#1 Clinical outcome assessments & registries

Working Group 1
WG Name	Clinical outcomes assesssments & registries
WG Leads	Thomas Klockgether (Bonn, Germany) Matthis Synofzik (Tübingen, Germany)
WG Objectives	Define a set of data including a graded catalogue of COAs that will serve as the standard for future sharing of clinical data and joint clinical studies. To keep the hurdles for contribution of data to common analyses and studies low, it was agreed to define a mandatory dataset (minimal dataset) that can ideally be obtained during a routine clinical consultation and a more demanding extended dataset that is useful for research purposes.
Results	A position paper on the Ataxia Global standard COAs will be drafted.

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