AGI Patient Organization Meeting

The Ataxia Global Initiative (AGI) is a worldwide research platform bring together academic or industry-based ataxia researchers, clinical investigators, ataxia clinicians, as well as representatives of patient organizations. Established in 2021, AGI focuses on trial readiness for ataxias and addresses key challenges such as (1) limited access to existing clinical data, (2) inappropriate sensitivity and patient relevance of outcome assessments, (3) lack of validated biomarkers, and (4) absence of an effective trial infrastructure.


AGI would like to invite all ataxia patient organizations to participate in our patient advocacy organizations (PAO) meetings. The meetings are organized by Julie Greenfield and Holm Graessner, leads of the AGI working group 7 “Policy and patient organization engagement”.

The purpose of the AGI PAO meetings is firstly to update ataxia patient organizations and patient groups on AGI activities, and secondly to engage ataxia patient organizations to collaborate in AGI activities.

All Ataxia PAOs are very welcome to partner up with AGI and participate in AGI’s WG 7 “Policy and patient organization engagement”.

If you have any questions, do not hesitate to contact the AGI office at: