Working Group 7 |
WG Name |
Policy and patient organization engagement |
WG Leads |
Julie Greenfield (Ataxia Research UK, UK)
Holm Graessner (Tübingen, Germany) |
WG Objectives |
- Propose charter including governance structure
- Facilitate cooperation with other stakeholders
- Establish trial readiness services including training measures
- Provide guidance on key activities of AGI such as data and biomaterial sharing
|
Results |
- MoU with C-Path focused on collaboration in CPTA
- Draft charter (April 2021)
|
If you are interested in participating in working group 7, please follow this link.