ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.
Topics: The webinars cover topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging are discussed.
Audience: Clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
Registration: Please visit the ERN-RND website.
Recorded webinars: The webinars are usually recorded and published on the "past webinars" webpage of ERN-RND approximately 2 weeks after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.
Below you can find the past ERN-RND webinars on ataxia:
| Date | Topic | Speaker | Institute | Slides | Recorded webinar |
|---|---|---|---|---|---|
| 9 November 2021 | Clinical Outcome Assessments in Ataxias | Thomas Klockgether | University Hospital Bonn, Germany | ||
| 6 July 2021 | Speech as a biomarker in ataxia: What can it tell us and how should we use it? | Adam Vogel | University of Melbourne, Australia | View webinar | |
| 13 April 2021 | MR Biomarkers in Spinocerebellar Ataxias | Gülin Öz | University of Minnesota, Minneapolis, USA | View webinar | |
| 24 November 2020 | Development of Sara-home: a novel assessment tool for patients with ataxia | Gessica Vasco Susanna Summa |
View slides | View webinar | |
| 10 November 2020 | Rehabilitation in ataxia: current evidence and practice | Ludger Schöls | University Hospital Tübingen, Germany | View slides | View webinar |
| 14 January 2020 | Inherited ataxias | Paola Giunti | UCL Queen Square Institute of Neurology, London, UK | View slides | View webinar |
| 17 December 2019 | Non-progressive congenital ataxia | Alfons Macaya | University Hospital Vall d'Hebron | View slides | View webinar |
| 5 November 2019 | Clinical approach to cerebellar ataxia | Bart van de Warrenburg | Radboud University Medical Center, Nijmegen, the Netherland | View slides | View webinar |