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Newsletter July 2023
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- New Chair and Vice Chair of the AGI Steering Committee
- AGI YII Webinars
- AGI Special Issue in Cerebellum
- NAF's Ataxia Clinical Training program: May 30 – June 1, 2024
- SARA Training Tool Access for AGI Members
- Become an AGI Member or Partner
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New Chair and Vice Chair
of AGI Steering Committee
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As of 15 July, the AGI Steering Committee has a new chair and vice-chair.
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We congratulate Matthis Synofzik on his new position as AGI Steering Committee Chair and Thomas Klockgether on his position as AGI Steering Committee Vice-Chair and wish both of them every success.
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Matthis Synofzik (Hertie-Institute for Clinical Brain Research, University of Tübingen, Germany)
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Steering Committee Vice Chair
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Thomas Klockgether (Department of Neurology, University of Bonn; German Center for Neurodegenerative Diseases (DZNE) Bonn)
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AGI Special Issue in Cerebellum
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iScience: AGI YII Webinar Series on Hot Topics
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Explore Your Future in Ataxia Research
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Speaker: Thomas Klockgether (Bonn, Germany) - WG1: Clinical outcomes and registries
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Tuesday, 11 July 2023, 3-4 pm CEST
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Speaker: Martin Reuter (DZNE Bonn, Germany) - WG3: MRI Biomarkers
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Monday, 17 July 2023, 3-4 pm CEST
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Speakers: Matthis Synofzik (Tübingen, Germany), Stephan Zuchner (Miami, USA), Matt Danzi (Miami, USA), Brent Fogel (Los Angeles, USA), David Pellerin (London, UK) - WG6: Next-generation genomics and platforms
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Tuesday, 12 September 2023, 8 pm CEST
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Speakers: Fay Horak (Oregon Health and Science University, USA); Winfried Ilg (University of Tuebingen, Germany) - WG4 Digital-motor biomarkers
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Tuesday, 19 September 2023, 5-6pm CEST
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Speakers: Filippo Santorelli (Pisa, Italy), David Mengel (Tübingen, Germany), Puneet Opal (Chicago, USA) - WG2 Molecular biomarkers & biosampling
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Tuesday, 24 October 2023, 5-6 pm CEST
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NAF's Ataxia Clinical Training Program:
May 30 – June 1, 2024
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Applications to attend Ataxia Clinical Training will open in August 2023!
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National Ataxia Foundation (NAF) will host its 2nd Ataxia Clinical Training program from May 30 to June 1, 2024 in Orlando, FL, US. Ataxia Clinical Training is an exceptional opportunity to gain practical knowledge about the diagnostic investigation and treatment of Ataxias, while personally interacting with patients affected by Ataxia. Discover the latest breakthroughs in the field of Ataxia and contribute to the future of Ataxia research and treatment. Whether you're an industry professional or a medical expert, Ataxia Clinical Training 2024 is your chance to expand your knowledge and make a real difference in the lives of those affected by Ataxia.
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Attendees are introduced to ongoing research in the field of Ataxia and can personally interact with patients and families affected by a wide spectrum of Ataxic disorders. The program includes topics on diagnostic approaches to Ataxias, heredodegenerative and Acquired Ataxias, neurogenetics of Ataxias, treatment of Ataxia, and research on Ataxia. It provides attendees with the ability to interact with Ataxia experts, many of whom are reputable clinicians and scientists, and explore opportunities for specializing in this field.
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In response to the overwhelming success of Ataxia Clinical Training 2023, NAF is extending the invitation to any interested industry or medical professionals seeking to broaden their understanding of Ataxia. Limited opportunities for partial sponsorship are available for movement disorder, neuromuscular, and genetics fellows.
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For more information and to stay updated, visit NAF website HERE or email Beth Bowerman, NAF's Clinical Services Coordinator, at beth@ataxia.org with any questions.
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Access for AGI Members to
SARA Training Tool
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AGI members can apply for (free non-commercial) access to SARA Training Tool.
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The SARA Training Tool has been developed by the DZNE (German Center for Neurodegenerative Diseases) and provides comprehensive and standardized training material and certification to reduce variability in applying the SARA (Scale for Assessment and Rating of Ataxia). SARA scores were recorded according to a standardized protocol and rated by three clinical experts in consensus. 348 videos of 67 patients are included in the SARA training tool. The tool includes:
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- The tutorial section demonstrates a complete SARA examination on a healthy control.
- In the training section, users can compare their ratings to consensus ratings and access a video library covering the complete SARA range.
- The tool also includes a section that allows optional certification.
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Become an AGI Member or Partner
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Become an AGI member or partner!
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The application for membership (as individual) and partnership (as organization) of the AGI is available on our website. More information about membership and partnership can be found in our charter.
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As a member, you can join the AGI working groups, nominate and vote for new members for the AGI Steering Committee, and attend our business meetings.
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