Newsletter July 2023

  • New Chair and Vice Chair of the AGI Steering Committee
  • AGI YII Webinars
  • AGI Special Issue in Cerebellum
  • NAF's Ataxia Clinical Training program: May 30 – June 1, 2024
  • SARA Training Tool Access for AGI Members
  • Become an AGI Member or Partner

New Chair and Vice Chair

of AGI Steering Committee

As of 15 July, the AGI Steering Committee has a new chair and vice-chair.

We congratulate Matthis Synofzik on his new position as AGI Steering Committee Chair and Thomas Klockgether on his position as AGI Steering Committee Vice-Chair and wish both of them every success.
Steering Committee Chair
Matthis Synofzik (Hertie-Institute for Clinical Brain Research, University of Tübingen, Germany)
Steering Committee Vice Chair
Thomas Klockgether (Department of Neurology, University of Bonn; German Center for Neurodegenerative Diseases (DZNE) Bonn)

AGI YII Webinars

AGI Special Issue in Cerebellum

The new webinar series organized by the AGI Young Investigator Initiative starts this month! Click on the webinar titles to open the registration forms.

iScience: AGI YII Webinar Series on Hot Topics
Explore Your Future in Ataxia Research

Clinical scales for ataxia: current state and ongoing developments
Speaker: Thomas Klockgether (Bonn, Germany) - WG1: Clinical outcomes and registries
Tuesday, 11 July 2023, 3-4 pm CEST

Deep-Learning in NeuroImaging
Speaker: Martin Reuter (DZNE Bonn, Germany) - WG3: MRI Biomarkers
Monday, 17 July 2023, 3-4 pm CEST

Repeat-expansions in ataxias: direct sequencing, detection by short-read WES/WGS vs. long-read WGS, and novel forms
Speakers: Matthis Synofzik (Tübingen, Germany), Stephan Zuchner (Miami, USA), Matt Danzi (Miami, USA), Brent Fogel (Los Angeles, USA), David Pellerin (London, UK) - WG6: Next-generation genomics and platforms
Tuesday, 12 September 2023, 8 pm CEST

Quantative Gait and Balance Outcomes for Ataxia Trials
Speakers: Fay Horak (Oregon Health and Science University, USA); Winfried Ilg (University of Tuebingen, Germany) - WG4 Digital-motor biomarkers
Tuesday, 19 September 2023, 5-6pm CEST

Future Projects for Biomarker Group
Speakers: Filippo Santorelli (Pisa, Italy), David Mengel (Tübingen, Germany), Puneet Opal (Chicago, USA) - WG2 Molecular biomarkers & biosampling
Tuesday, 24 October 2023, 5-6 pm CEST

Two new manuscripts have been accepted for publication in our AGI Special Issue on “Trial-readiness in ataxias: recommended protocols, resources and platforms of the Ataxia Global Initiative” in Cerebellum.

1. Standards of Fluid Biomarker Collection and Pre-analytical Processes in Humans and Mice: Recommendations by the Ataxia Global Initiative Working Group on Biomarkers.
Santorelli et al. (2023)

2. MR imaging in ataxias: Consensus recommendations by the Ataxia Global Initiative Working Group on MRI Biomarkers.
Öz et al. (2023)

NAF's Ataxia Clinical Training Program:

May 30 June 1, 2024

Applications to attend Ataxia Clinical Training will open in August 2023!

National Ataxia Foundation (NAF) will host its 2nd Ataxia Clinical Training program from May 30 to June 1, 2024 in Orlando, FL, US. Ataxia Clinical Training is an exceptional opportunity to gain practical knowledge about the diagnostic investigation and treatment of Ataxias, while personally interacting with patients affected by Ataxia. Discover the latest breakthroughs in the field of Ataxia and contribute to the future of Ataxia research and treatment. Whether you're an industry professional or a medical expert, Ataxia Clinical Training 2024 is your chance to expand your knowledge and make a real difference in the lives of those affected by Ataxia.

Attendees are introduced to ongoing research in the field of Ataxia and can personally interact with patients and families affected by a wide spectrum of Ataxic disorders. The program includes topics on diagnostic approaches to Ataxias, heredodegenerative and Acquired Ataxias, neurogenetics of Ataxias, treatment of Ataxia, and research on Ataxia. It provides attendees with the ability to interact with Ataxia experts, many of whom are reputable clinicians and scientists, and explore opportunities for specializing in this field.

In response to the overwhelming success of Ataxia Clinical Training 2023, NAF is extending the invitation to any interested industry or medical professionals seeking to broaden their understanding of Ataxia. Limited opportunities for partial sponsorship are available for movement disorder, neuromuscular, and genetics fellows.

For more information and to stay updated, visit NAF website HERE or email Beth Bowerman, NAF's Clinical Services Coordinator, at with any questions.

Access for AGI Members to

SARA Training Tool

AGI members can apply for (free non-commercial) access to SARA Training Tool.

The SARA Training Tool has been developed by the DZNE (German Center for Neurodegenerative Diseases) and provides comprehensive and standardized training material and certification to reduce variability in applying the SARA (Scale for Assessment and Rating of Ataxia). SARA scores were recorded according to a standardized protocol and rated by three clinical experts in consensus. 348 videos of 67 patients are included in the SARA training tool. The tool includes:

  • The tutorial section demonstrates a complete SARA examination on a healthy control.
  • In the training section, users can compare their ratings to consensus ratings and access a video library covering the complete SARA range.
  • The tool also includes a section that allows optional certification.

Become an AGI Member or Partner

Become an AGI member or partner!
The application for membership (as individual) and partnership (as organization) of the AGI is available on our website. More information about membership and partnership can be found in our charter.
As a member, you can join the AGI working groups, nominate and vote for new members for the AGI Steering Committee, and attend our business meetings.

Contact us