Newsletter September 2021

  • Registration AGI symposium 22 & 23 November
  • Chair & vice-chair AGI Steering Committee
  • Nominations for new members of the AGI Steering Committee
  • Events
  • Reminders
  • Rare Diseases: Models & Mechanisms Network - call for Canadian researchers

Registration AGI symposium 22 & 23 November

The first Ataxia Global Initiative Symposium will take place on Monday 22 & Tuesday 23 November this year. The meeting will be fully online. During this meeting, entitled 'Getting ready for clinical trials', you can enjoy keynote talks on various topics, as well as hear the latest on the AGI projects and working groups. A preliminary programme is available by clicking here.

Please register by clicking the link below in order to attend this meeting. Note that the business meeting is open to AGI members only, so if you have not applied for AGI membership yet, you should do so now!

Chair and vice-chair AGI Steering Committee

Klockgether & Matthis
During the AGI Steering Committee (SC) meeting in July, the SC members voted to install Thomas Klockgether (Bonn, Germany) as chair of the AGI SC and Matthis Synofzik (Tübingen, Germany) as vice-chair. They will both serve a two-year term.

Nominations new members of the AGI Steering Committee

The AGI Steering Committee (SC) currently consists of 13 members. Of these members, 2 represent patient organisations and the other members are from academia. According to the charter, the Steering Committee has room for 2 additional members. One of these spaces is reserved for a member from industry.

Are you interested in becoming a member of the AGI SC, or do you want to nominate someone for this position? Please follow the link below to send us your nominations! The deadline for nominations is 31 October 2021.

Voting will take place by AGI members in the first weeks of November, and the results will be communicated during the business meeting of the AGI symposium.

Note that nominating and voting for new SC members is open to AGI members only, so if you have not applied for AGI membership yet, you should do so now!


17 - 22 September 2021
MDS virtual congress

15 - 17 October 2021
Virtual Annual Conference Ataxia UK: - Ataxia Unlocked'

9 November 2021
15.00 - 16.00 CET
ERN-RND Ataxia webinar by Thomas Klockgether

22 - 23 November 2021
AGI symposium (online) - 'Getting ready for clinical trials


Become an AGI member or partner!
The application for membership and partnership of the AGI is now open on our website. More information about membership and partnership can be found in our charter.
As a member, you can nominate and vote for new members for the AGI Steering Committee, and you will get an invitation for the business meeting during the symposium in November.
Join a Working Group
Would you like to join an AGI Working Group? Please fill out the survey using the link below to provide us with your information.
Submit your project proposal
AGI projects are projects proposed by AGI members and endorsed by the Steering Committee. The next deadline for project proposals is 15 December 2021. Find more information on our website.

Rare Diseases: Models & Mechanisms Network - call for researchers in Canada

RDMM is partnering with the National Ataxia Foundation to launch a call for proposals utilizing a model organism approach to investigate disease pathogenesis and/or to inform therapeutic strategies.

The research approach in the application should include the use of a relevant model organism, and focus on either of three genes of interest for this call: SETX, ATXN3, and RFC1.

Applications may be submitted by any investigator associated with a Canadian Institution.

More information on the RDMM website.

Contact us

Questions? Items for the next newsletter? Don't hesitate to contact us!

Ataxia Global Initiative Office Tübingen
Holm Graessner, Birte Zurek, and Annemarie Post

All previous AGI newsletters can be found here.
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