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Newsletter February 2026
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- AGI Ataxia Expert Masterclass
- AGI Webinar Series "Preventive Trials for SCAs"
- AGI Regional Conference: Latin America
- Join AGI Trial Site Registry
- ICAR 2026
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1. AGI Ataxia Expert Masterclass
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The Ataxia Global Initiative is inviting you to register for the 1st AGI Ataxia Expert Masterclass, which will take place online, on 21-23 April 2026, entitled:
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Genetics, Disease Mechanisms, and Trial Readiness in SCAs
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With focus on Spinocerebellar Ataxias (SCAs), the masterclass will bring together leading international experts to address key topics in clinical trial readiness in SCAs.
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Outcomes – Clinical and Digital
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Outcomes – Imaging and Molecular
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This masterclass is designed for clinicians and basic researchers working in ataxias. It assumes prior foundational knowledge of ataxia characteristics, such as that gained through NAF/MDS training or comparable clinical or research experience.
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The AGI operates on a not-for-profit basis and relies on participation fees from industry members to cover operating expenses (1.500 €). Non-industry participants may register free of charge.
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2. AGI Webinar Series
"Preventive Trials for SCAs"
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It is still possible to register for our webinar series on preventive trials in SCAs. The series started in October 2025 and will end in June 2026.
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3. AGI Regional Conferences:
Latin America
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We are pleased to announce the first AGI Regional Conference, taking place online on 7 May 2026, with a dedicated focus on Latin America countries.
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This virtual meeting will be held ahead of the Brazilian Academy of Neurology Meeting (7–8 May 2026, hybrid) and will bring together leading clinical investigators from across the region.
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- Presentation on major Latin American ataxia centers and patient cohorts (Argentina, Brazil, Chile, Cuba, Mexico, Peru, Venezuela, etc.)
- Experiences in studying and managing hereditary ataxias
- Regional challenges and opportunities in clinical research and care
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Registration will be open to:
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AGI members, ataxia clinicians and researchers, patient advocacy organization members, and industry members.
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More details and registration information will be shared soon — we encourage you to save the date!
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4. Join AGI Trial Site Registry
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Sites seeing ataxia patients are welcome to join the AGI Trial Site Registry (AGI-TSR). Set up by the Ataxia Global Initiative, the AGI-TSR is a global registry of clinical ataxia centers/ataxia sites (with currently 71 sites worldwide registered).
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Why register? Being part of the AGI-TSR connects your site to the wider ataxia research landscape. It helps make your site visible for future collaborations, clinical trial opportunities, and data-sharing initiatives. It’s also a great way to contribute to a coordinated, global effort to advance care and treatment for people living with ataxia.
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If your center is engaged in clinical care or research for ataxia, this is a great opportunity to connect, contribute, and collaborate.
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👉 Join the AGI-TSR and help advance ataxia trial readiness!
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Ataxia UK, National Ataxia Foundation (NAF), Friedreich’s Ataxia Research Alliance (FARA), and Ataxia Global Initiative (AGI) are pleased to announce the date for the next International Congress for Ataxia Research (ICAR).
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ICAR 2026 will take place at the Renaissance Atlanta Waverly Hotel & Convention Center in Atlanta, Georgia, U.S. Please save the date for November 10-13, 2026.
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ICAR 2026 will be the place to share the latest ataxia research, including updates on Friedreich's ataxia and SCAs 1, 2, 3, 6, 7, and more. Attendees will hear developments in novel treatment approaches, clinical trial results, and scientific debates from leading ataxia researchers. There will also be the opportunity to network with academic and industry leaders. Special sessions and events are planned for junior researchers.
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Become an AGI Member or Partner
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Become an AGI member or partner!
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The application for membership (as individual) and partnership (as organization) of the AGI is available on our website. More information about membership and partnership can be found in our charter.
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As a member, you can join the AGI working groups, nominate and vote for new members for the AGI Steering Committee, and attend our business meetings.
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