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Newsletter October 2025
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- AGI Webinar Series "Preventive Trials for SCAs"
- Application Submission for Ataxia ACT
- Join AGI Trial Site Registry
- Save-the-Date for ICAR 2026
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1. AGI Webinar Series
"Preventive Trials for SCAs"
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Ataxia Global Initiative is launching a new webinar series focusing on preventive trials in the spinocerebellar ataxias (SCAs) — a developing area in ataxia research.
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Preventive approaches build on recent progress in understanding pre-ataxic disease stages and early biomarkers, representing the next step toward earlier intervention. This concept has already been explored in other neurodegenerative diseases, and the series aims to translate these insights to SCAs. See the full program here.
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The webinars will address:
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- The rationale for preventive trials
- Characterization of the pre-ataxic stage in SCAs
- Lessons learned from related conditions
- The potential of emerging biomarkers
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We invite you to register and take part in this series exploring the evolving landscape of preventive research in SCAs.
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2. Application Submission for Ataxia ACT
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The Ataxia Advisory Committee for Therapeutics (Ataxia ACT) is pleased to announce that applications are now open for our online meeting in April 2026.
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Are you working on a preclinical or clinical ataxia therapy development program?
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Get academic expert input to strengthen your strategy and take it to the next level.
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Ataxia ACT offers tailored, multi-disciplinary reviews to help overcome common challenges in ataxia drug development—from validating therapeutic targets and evaluating preclinical data to optimizing trial design and regulatory strategy.
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Ataxia ACT Meetings in 2026
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Pre-application deadline: 15 January 2026
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Full application deadline: 15 February 2026
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November 2026 - Atlanta, Georgia, U.S. - prior to the ICAR
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Pre-application deadline: 1 July 2026
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Full application deadline: 1 August 2026
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3. Join AGI Trial Site Registry
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Sites seeing ataxia patients are welcome to join the AGI Trial Site Registry (AGI-TSR). Set up by the Ataxia Global Initiative, the AGI-TSR is a global registry of clinical ataxia centers/ataxia sites (with currently 64 sites worldwide registered).
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Why register? Being part of the AGI-TSR connects your site to the wider ataxia research landscape. It helps make your site visible for future collaborations, clinical trial opportunities, and data-sharing initiatives. It’s also a great way to contribute to a coordinated, global effort to advance care and treatment for people living with ataxia.
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If your center is engaged in clinical care or research for ataxia, this is a great opportunity to connect, contribute, and collaborate.
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👉 Join the AGI-TSR and help advance ataxia trial readiness!
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4. Save-the-Date for ICAR 2026
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Ataxia UK, National Ataxia Foundation (NAF), Friedreich’s Ataxia Research Alliance (FARA), and Ataxia Global Initiative (AGI) are pleased to announce the date for the next International Congress for Ataxia Research (ICAR).
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ICAR 2026 will take place at the Renaissance Atlanta Waverly Hotel & Convention Center in Atlanta, Georgia, U.S. Please save the date for November 10-13, 2026.
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ICAR 2026 will be the place to share the latest ataxia research, including updates on Friedreich's ataxia and SCAs 1, 2, 3, 6, 7, and more. Attendees will hear developments in novel treatment approaches, clinical trial results, and scientific debates from leading ataxia researchers. There will also be the opportunity to network with academic and industry leaders. Special sessions and events are planned for junior researchers.
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Become an AGI Member or Partner
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Become an AGI member or partner!
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The application for membership (as individual) and partnership (as organization) of the AGI is available on our website. More information about membership and partnership can be found in our charter.
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As a member, you can join the AGI working groups, nominate and vote for new members for the AGI Steering Committee, and attend our business meetings.
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