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Newsletter April 2025
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- Recent Ataxia ACT Meeting
- Upcoming Ataxia ACT Meeting, 6-7 November 2025
- Join AGI Trial Site Registry
- AT Clinical Research Conference
- 2025 International MJD Conference
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1. Recent Ataxia ACT Meeting
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We’re excited to share that our recent online Ataxia Advisory Committee for Therapeutics (Ataxia ACT, 3 April 2025) meeting was a great success! Bringing together a dynamic multi-disciplinary group of international experts, the sessions were packed with thoughtful discussion, valuable insights, and a shared commitment to accelerating therapy development for ataxias.
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The Ataxia ACT is one of AGI’s trial readiness services. Its main objective is to review and provide objective advice on the planning and execution of preclinical and clinical therapy development programs for (all forms of) ataxias.
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2. Upcoming Ataxia ACT Meeting,
6-7 November 2025
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Ataxia Advisory Committee for Therapeutics (Ataxia ACT) opened application submission for the next Ataxia ACT meeting, taking place on 6-7 November 2025.
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Are you working on a preclinical or clinical ataxia therapy development program? Let us to review your program from a multi-disciplinary perspective to help strengthen it for the next stage.
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6-7 November 2025, Europe, place tba
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Pre-application deadline: 1 July 2025
Full application deadline: 1 August 2025
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Four places are currently available
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3. Join AGI Trial Site Registry
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Sites seeing ataxia patients are welcome to join the AGI Trial Site Registry (AGI-TSR). Set up by the Ataxia Global Initiative (AGI), the AGI-TSR is a global registry of clinical ataxia centers/ataxia sites (with currently 46 sites worldwide registered).
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Why register? Being part of the AGI-TSR connects your site to the wider ataxia research landscape. It helps make your site visible for future collaborations, clinical trial opportunities, and data-sharing initiatives. It’s also a great way to contribute to a coordinated, global effort to advance care and treatment for people living with ataxia.
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If your center is engaged in clinical care or research for ataxia, this is a great opportunity to connect, contribute, and collaborate.
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👉 Join the AGI-TSR and help advance ataxia trial readiness!
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4. AT Clinical Research Conference
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The AT Society, in collaboration with the A-T Global Alliance, are delighted to be hosting the first international, in-person AT Clinical Research Conference since 2018!
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This landmark event will bring together the world’s leading AT scientists and clinical experts to collaborate, share ideas and drive forward solutions to improve patient outcomes. It is conveniently taking place in the heart of England, on the site of an outstanding UK university, with typically British villages just minutes away, Shakespeare’s birthplace and one of the UK’s best loved national parks within easy reach, and only 90 minutes from London.
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The conference is for professionals and will lead into the AT Society Family Weekend (27-29th June), where UK families affected by AT come together for support, connection, and learning.
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5. 2025 International MJD Conference
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📣 Join the 2025 International MJD Conference (hybrid), taking place on 10-12 May 2025, in Darwin, Australia, and organized by the Machado-Joseph Disease Foundation (MJDF). Held under the theme “Bridging Science and Service”, the event will bring together researchers, clinicians, policymakers, and community members to advance culturally responsive healthcare for cerebellar ataxia.
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Become an AGI Member or Partner
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Become an AGI member or partner!
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The application for membership (as individual) and partnership (as organization) of the AGI is available on our website. More information about membership and partnership can be found in our charter.
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As a member, you can join the AGI working groups, nominate and vote for new members for the AGI Steering Committee, and attend our business meetings.
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